When their daughter Kimmy was diagnosed with leukemia, Daniel and Taimi Hachey were told her disease had a 90% survival rate. Later tests showed Kimmy had Philadelphia chromosome-like precursor B-cell acute lymphoblastic leukemia, a rare type, difficult to treat. The adjusted survival rate? Only 50-60%. Her diagnosis went from, “The cure rate is high,” to “We are very concerned about her outcome.”
The Alliance for Childhood Cancer Action Days in Washington, D.C., is an opportunity for members of the childhood cancer community – from kids and their families to health care professionals and volunteers – to advocate for childhood cancer issues before Congress.
St. Baldrick’s Honored Kid, Scott, a 10-year-old whose cancer is in remission, attended Action Days with his mom Nancy and has provided us with the following report on his experiences in Washington.Scott (left) attended Childhood Cancer Action Days in Washington, D.C., in late March.
As we wrap up National Volunteer Week, today we’ll meet two more volunteers with very different stories: one is the mom of a child diagnosed with cancer; the other, a researcher who’s devoted her career to early detection of childhood cancers.
Both will show us that it doesn’t matter how you get involved – just that your involvement is crucial to the work of the St. Baldrick’s Foundation.
It’s Valentine’s Day and that means exchanging cards, chocolates, teddy bears, and flowers with loved ones. The prevailing symbol of Valentine’s Day is the heart – which makes sense, given that the day is all about showing love and affection.
Because the heart is so central to Valentine’s Day, it’s a useful time to reflect on how childhood cancers impact this vital organ. Unfortunately, childhood cancers affect far more than the parts of the body in which they emerge – brain cancer doesn’t just harm the brain; leukemia doesn’t just affect the blood; and bone cancers often spread to the major organs.
The League of Legendary Heroes is an order of dedicated volunteers who’ve participated in St. Baldrick’s Foundation events for three or more years. Each year, St. Baldrick’s names a League Champion to lead and inspire this group to raise money for lifesaving childhood cancer research.
Georgia Moore, our newest League Champion of the League of Legendary Heroes, just celebrated her 19th birthday on Dec. 30. The following day, New Year’s Eve, marked nine years since Georgia was diagnosed with acute lymphoblastic leukemia (ALL).
Our 2019 League Champion, Georgia Moore (third from left), appears with her family at Tufts University.
Each year, the St. Baldrick’s Foundation picks five kids to serve as Ambassadors. In this role, they represent the thousands of kids affected by childhood cancers and remind us of the importance of supporting childhood cancer research.
Take any group of kids and they’ll all have their own way of talking, their own opinions on books, movies, and video games, their own favorite foods.
But there is one thing the St. Baldrick’s 2019 Ambassadors have in common: childhood cancers. Beyond that, they share the support of loving families and a desire to inspire others to raise money for childhood cancer research.
Our 2019 Ambassadors, from left to right: Aiden, Arianna, Sullivan, Gabby, and Brooke.
With 2018 winding down, it’s time to thank this year’s St. Baldrick’s Ambassadors for their help raising funds and awareness for pediatric cancer research. This group of five kids and their families inspired us with their unique stories of courage and their refusal to give up hope.
We’ll be welcoming a new group of Ambassadors in the new year. For now, let’s check in on the 2018 team to see how they’re doing and what they enjoyed about the Ambassador experience.
Our 2018 Ambassadors, from left: Brooks, Kellan, Maya, Zach, and Julia.
Most six-year-old boys spend their time thinking about toys, candy and getting to school on time. Few need to worry about their health at such a young age, and even fewer face the uncertain future following a cancer diagnosis.
Fighting cancer was Zach’s world when he was six. In 2007, he was diagnosed with acute lymphoblastic leukemia, or ALL. Over the next four years, Zach underwent intense and physically demanding treatments like chemotherapy and radiation.
With the holiday season upon us and another year drawing to a close, it’s a great time to reflect on some of the major research accomplishments of doctors and scientists whose work on childhood cancers benefited from the support of St. Baldrick’s donors like you.
There’s much to be thankful for. All things considered, 2018 was a remarkably successful year for childhood cancer research, with much of that success spurred on by grants funded by St. Baldrick’s. Of course, none of this would have been possible without our generous donors.
Dr. Kohanbash’s cutting-edge research on ependymomas is supported by a Hero Fund in memory of Henry Cermak, who passed away in 2008 after a long, 2-year fight that included many surgeries, chemo regimens, and 93 rounds of radiation.
The holiday season is about giving – and what better gift for your loved ones than something that helps a great cause, like taking childhood back from cancer. Not only are the items below awesome gift ideas, but a portion of each sale goes to the St. Baldrick’s Foundation.
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